Sunday
morning carried on with our usual routine: coffee, a little 2-lap jog
around the neighborhood, and now clean up to get ready for church. D
approached me with a look of slight anxiety. He was having one of his
“Luke dilemmas” and needed some affirmation to relieve his
fatherly guilt. It was a packed Sunday with an evening booked up for
church meeting and thus he was not able to do their long bike route
across the river. It would incur an extra hour just from the car
trip itself. Years of majoring in guilt for both children, I have
developed a coping mechanism more skillfully than the father. I gave
him a boost of assurance: “He will be fine – just do the biking
somewhere close.” After another dose of lecture “you are not to
live for his happiness alone” from me, He called out to Luke from
the bottom of the stairs to the TV room and proposed the alternative
in an optimistic tone as an effort we both knew to convince more
himself than Luke. We heard him reply ok. I arched my eyebrow,
“see?” in short for “how easy is that”.
So
that was it. At least I thought. They left shortly after for Luke’s
Sunday music rehearsal and I continued on with my usual routine to
get ready for church. “Sabbath rest” does not apply to an old
woman like me or I seem to be violating it every Sunday before I head
out to the door. Then the phone rang. Usually it meant something
has been forgotten: Luke’s music or our nursery duty reminder.
This time was neither. D’s voice was one of those “you won’t
believe what happened”. They were making their usual Sunday round,
the sacred 7-11 stop for D’s coffee and Luke’s donuts, when the
father noticed the son’s unusual dejection. Donuts did not do
their trick – that itself was an alarming signal. What’s wrong?
D asked, only to be replied with “Nothing”. Our perfect son who
lives for our approval is no mystery to read – you may not know
what bothers him, but you would always know when he is bothered.
Another round of “what” and “nothing” went on. Finally upon
D’s insistent inquiry the truth came out. Luke said in a
melancholic tone: “you ruined my day”.
One
of those impulsive sentences that we have reserved unless we are
provoked to retort back, it surely is not anyone’s favorite for
both the giver and receiver. Silence set in between D and me just
like that. For a brief moment, we were lost in words. Quickly
enough, I came back with an incredulous “Really?”, which both he
and I understood why and where the curiosity came from. Yes,
really. He affirmed. We ended our call finally with an unresolved
mystery hung in the air.
He
would turn 25 by October; a full grown adult to say the least. As
perfect as he may be in our eyes, he still has his moments or room to
err and sin. I have always thought of the nursery rhyme “There was
a little girl who had a little curl… when she was good, she was
very, very good; but when she was bad she was horrid”. That just
about summed up Luke’s life – 99% of “very, very good” and 1%
of “horrid” – in the form of tantrum, absurdity or even
insanity when no words or actions can console or resolve. But that
sentence surely does not fit in either end. It was in fact normal
and, yes, so appropriate.
So
why the puzzle? What could possibly confuse us after dealing with the
worst of “horrid”? For one, it was not one of his sentences.
Moreover, it wasn’t his usual pattern of handling disappointment.
Emotional outbursts: yes; logical expressions: not for people like
Luke. I could think of all the sentences he has spoken all his life
– all of which have been learned or coached products with little
room for exception. Even the tone itself at times comes formulated
or robotic. Autistic people do that. they are the stereotyped
imitators. I recall him at 2 years old when he started talking how
simple and minimal his vocabulary was. For the longest time before
we found out the final diagnosis our communication had always been
one-directional: words, phrases, numbers went freely into that
mysterious bank of brain and yet little came out in a functional or
meaningful way. He talked very little; at best he echoed.
Over
20 years of schooling and coaching, words continue to be his
tormentor. I believe he is afraid or terrified to express himself
with the exception of his interests or fixations. We have had the
hardest time with him telling us what bothers him when he is plainly
distressed. His fear to disappoint us outweighs his own
disappointment thus the only mean with which his predicament may be
resolved is also his gravest evil. In his world, emotions contain a
black-and-white happy or sad while words are perceived in 2 simple
categories - approval and rejection. In a nutshell, approval makes
him happy and rejection makes him sad. Thus our almost-perfect son
perpetually struggles with his own and our imperfection in a world
that is anything but perfect.
Back
and forth from the past to present, I was thrown into another
whirlwind of emotions while I pondered on the 4 most ordinary words
in a most extraordinary disclosure. I thought I had this simple and
innocent creature figured out, but “you ruined my day” thwarted
out all my expectation. What overwhelmed both of us, confusion
included, was this exquisite sensation –surprise, gratefulness, and
joy… I was thinking how this little shadow of life could continue
to tug my heart like that, but most of all I wonder if anyone ever
begin to understand when he said “you ruined my day” he made my
day?