5pm on a January day, cold even for southern Virginia. Outside the remnant of daylight was slipping away quietly and inside dusky and soundless. I was listening for the door and Luke walking in from his daily trip to the gym. Instead, the phone rang and broke the silence. I dashed to reach for the handset – a late afternoon phone call could only mean 2 things: his call to say he was coming home or he was stuck somewhere with a flat. It was neither. The voice was agitated and hesitant. “Nothing”, he repeated, when it meant anything except nothing. He clams shut when he is unsure or frightened. Finally, I traced down to the cause: he had gone to his father’s lab and could not find him. It was but a few miles from home, but he was in no shape of choosing the option to return home in his bike when he was stuck in that mood. My small cross-over has no capacity to accommodate his bike, thus I could not offer to come pick him and his bike up. Desperate times call for desperate measure. The only option left was to call his brother at the dorm. Can you pick Luke up with the van? I explained why and apologized for the bad timing. It was rush hour time and the traffic could be at the peak of its worse. There was not a second thought or reluctance. He quickly said yes and was on his way already.
45 minutes later, the door opened and in walked Luke, alone. His brother had dropped him home and left. I hurried outside, hoping to catch him – to praise and thank him and maybe even persuade him with a dinner. The driveway was empty with no trace of his van. There was a sliver of emptiness in my heart from the disappointment. An average son would have come in to say hi or something. Then again, an average son would not have gone out to bail his helpless brother without a whine or fight. He was nothing average.
He had finished his Christmas break and gone back to his dorm just this week. It was but a short 3-week stay, including the 5-day family vacation he bailed out at the last minute. My nothing-average son is looking quite average in his growing up and away. There no longer exists much family bonding time when he is home. He stayed in his room most of the time. When he came out, he would be upstairs watching TV or his DVD’s. Occasionally both of them might share the same facility or space, mostly during Luke’s passion, the game shows, for you could hear their zealous exchanges or uproars on and off, one serious participating and another one comical commenting. It was an odd combination of many things: normal and yet rare, fun and sad, sweet and sour. Regardless, for this not-so-ordinary family, it almost made us ordinary.
No, moments like that maybe everyday or everywhere for others, but for us it has been a long time coming. I remember the first few years of his life how hopeful we once felt, for us and for his autistic brother. His animation, difference and even brilliance were the only things that brought us afloat. He would be fine, we said to ourselves, no, more than fine. And when we are gone, he would be there for his lesser brother. He would be his protector, his keeper. Sadly, this high hope came tumbling down soon enough. For the longest time, the promised rescuer turned into a persecutor – oscillating between a ghost-like shadow and a volcanic, damaging nightmare that you can’t wait to wake up from. It consumed and depleted us all to the bone. When his own label finally came in, it did not bring us any relief. The truth, instead of setting us free, left us a harsh reality that these two children shall be one day left behind, equally alone and helpless.
Does time really heal all wounds? Or is it the distance that makes the heart grow fonder? I wonder. The 3-mile-away college somehow seems to have brought back that 3-year-old who was once Luke’s shadow and sunshine. The compassion has returned and replaced impatience or sometimes shame. The same exclamation, “LUKE!”, no longer sounds annoyed or unkind but rather fond and almost indulging. Nearly 15 years of broken dream later, I have been trained to take life as it is, one day at a time, with little expectation. I have no other alternative but to cling to the hope that claims not to disappoint. And I was certainly not at all disappointed then. On the contrary, I was almost hopeful! I looked out of the empty driveway and imagined how they unloaded Luke’s bike together and him saying “you ok, Luke?” before driving off. That emptiness in my heart from the earlier disappointment was suddenly filled. I realized then the promise might just have been delivered - except more than I ever dreamed of: both his brother’s keeper and his keeper.
45 minutes later, the door opened and in walked Luke, alone. His brother had dropped him home and left. I hurried outside, hoping to catch him – to praise and thank him and maybe even persuade him with a dinner. The driveway was empty with no trace of his van. There was a sliver of emptiness in my heart from the disappointment. An average son would have come in to say hi or something. Then again, an average son would not have gone out to bail his helpless brother without a whine or fight. He was nothing average.
He had finished his Christmas break and gone back to his dorm just this week. It was but a short 3-week stay, including the 5-day family vacation he bailed out at the last minute. My nothing-average son is looking quite average in his growing up and away. There no longer exists much family bonding time when he is home. He stayed in his room most of the time. When he came out, he would be upstairs watching TV or his DVD’s. Occasionally both of them might share the same facility or space, mostly during Luke’s passion, the game shows, for you could hear their zealous exchanges or uproars on and off, one serious participating and another one comical commenting. It was an odd combination of many things: normal and yet rare, fun and sad, sweet and sour. Regardless, for this not-so-ordinary family, it almost made us ordinary.
No, moments like that maybe everyday or everywhere for others, but for us it has been a long time coming. I remember the first few years of his life how hopeful we once felt, for us and for his autistic brother. His animation, difference and even brilliance were the only things that brought us afloat. He would be fine, we said to ourselves, no, more than fine. And when we are gone, he would be there for his lesser brother. He would be his protector, his keeper. Sadly, this high hope came tumbling down soon enough. For the longest time, the promised rescuer turned into a persecutor – oscillating between a ghost-like shadow and a volcanic, damaging nightmare that you can’t wait to wake up from. It consumed and depleted us all to the bone. When his own label finally came in, it did not bring us any relief. The truth, instead of setting us free, left us a harsh reality that these two children shall be one day left behind, equally alone and helpless.
Does time really heal all wounds? Or is it the distance that makes the heart grow fonder? I wonder. The 3-mile-away college somehow seems to have brought back that 3-year-old who was once Luke’s shadow and sunshine. The compassion has returned and replaced impatience or sometimes shame. The same exclamation, “LUKE!”, no longer sounds annoyed or unkind but rather fond and almost indulging. Nearly 15 years of broken dream later, I have been trained to take life as it is, one day at a time, with little expectation. I have no other alternative but to cling to the hope that claims not to disappoint. And I was certainly not at all disappointed then. On the contrary, I was almost hopeful! I looked out of the empty driveway and imagined how they unloaded Luke’s bike together and him saying “you ok, Luke?” before driving off. That emptiness in my heart from the earlier disappointment was suddenly filled. I realized then the promise might just have been delivered - except more than I ever dreamed of: both his brother’s keeper and his keeper.
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